Mindy Uhrlaub

Hello!

And welcome to my newsletter. I am excited to share with you that my latest book, Last Nerve, has been published and will be available for purchase on Amazon on May 27th.

I’ll be sending this newsletter out for the next few months to update you on my book tour, speaking schedule and other noteworthy events.

Please enjoy it!

LAST NERVE
A Memoir of Illness and the Endurance of Family

UPCOMING EVENTS

REVIEWS

‘Last Nerve: A Memoir of Illness and the Endurance of Family,’ is a singularly courageous exploration of what it means to face adversity head-on. Writing with breathtaking honesty, Mindy Uhrlaub takes us on a deeply compelling journey through resilience, love, and the unbreakable bonds of family. Proving that all the best stories, like this one, are about hope.

-
Janis Cooke Newman
author of The Russian Word for Snow and A Master Plan for Rescue

RECENT FEATURES

ALS ACTIVISM

Mindy Uhrlaub is a carrier of the fatal C9orf72 gene and is an activist for genetic carriers of ALS. She is a member of the Peer Mentor Team at I AM ALS, a founding member of Genetic ALS/FTD: End the Legacy, and participates in more than a dozen longitudinal studies of ALS. She is also the author of the forthcoming book, Last Nerve. Uhrlaub has testified before the National Institutes for Health and the Food and Drug Administration, demanding early access to life-saving drugs for presymptomatic carriers of genetic ALS. She is enrolled in longitudinal research to study how a presymptomatic carrier of C9orf72 ALS responds to an ALS drug.

BLOG

My blog is now live on my website. My entries chronicle the stages of my ALS journey. New posts will be made biweekly.

Mindy Uhrlaub