A Memoir of Illness and the Endurance of Family ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏

Mindy Uhrlaub

Hi Friends!

It’s been a little bit since my last newsletter, but I’ve still been working hard to raise awareness for ALS. I continue to hold out hope for a cure. Below is an image of me with my wonderful phlebotomist who comes to my house every three months.

Thank you for continuing this journey alongside me.

UPCOMING EVENTS - SAVE THE DATE!

San Miguel de Allende Writers’ Conference
February 11 - 15, 2026
Mexico
Learn More >>

Panel Discussion: Genetic Legacies of Neurodegenerative Disease
March 10, 2026 | 4:30-6:00pm
UCSF's Sandler Auditorium
675 Nelson Rising Lane
San Francisco

Books by the Bay Festival
March 28, 2026
10:00am - 4:00pm EST
Pensacola, FL
I will be speaking & selling books
Learn More >>

Annapolis Book Festival
May 2, 2026
Annapolis, MD
I will be speaking & selling books
Learn More >>

WriterCon
September 4 - 7, 2026
Oklahoma City, OK
I will be speaking & selling books
Learn More >>

Please Leave a Review!

Did you know that you can review my book on Amazon even if you didn't buy it there? Thank you to all who have reviewed it already!

To leave a review, go to Amazon, log in and click on “Write a customer review” which is on the left hand side at the start of the reviews.

 WRITE A REVIEW 

SAMPLE 5-STAR AMAZON REVIEW

“The Last Nerve is a courageous and deeply personal journey through the realities of living with the ALS gene. Mindy’s story is both heartbreaking and inspiring — she shares the pain of losing her mother to ALS, the fear of what the future might hold, and the heavy question of whether she may have passed the same gene to her children.

As an ALS advocate, I was moved by her honesty and strength. Mindy doesn’t hide from the truth; she faces it head-on, revealing not only her family’s trauma but also her determination to live fully and love fiercely in the face of uncertainty.

This book reminds us that ALS is more than a disease — it’s a story of families, courage, and the will to keep hoping even when the odds seem impossible. Mindy’s voice is a gift to our community and a call for greater empathy, awareness, and action.

The Last Nerve will stay with you long after the last page.”

  • McFinn Lovere
    ALS Advocate

 READ OTHER REVIEWS 

RECENT NEWS & FEATURES

Click on the images below to watch recent interviews and read recent articles about Last Nerve and my ALS activism.

ALS Network Walk and Roll
November 16, 2025
Los Angeles, CA
The interview at my booth is 37:09 to 40:15 and the award is 1:23:00 to 1:28:11
Watch the event >>

Virtual C9orf72 Summit
Barrow Neurological Intitute

December 15, 2025
I was invited to give opening remarks.

Page Street’s Litnight
January 23, 2026
Read a piece about the fake AI biography of my that I found on Amazon
Read it here >>

 LEARN MORE ABOUT MY ALS ACTIVISM WORK 

RECENT BLOG POSTS

The Best Thing to Happen to me: My New Normal

Read Blog Post >>

I Was Already an Activist, but the Book Made me Visible: What Power Looks Like Now

Read Blog Post >>

 READ MY BLOG 

ABOUT LAST NERVE

Last Nerve begins as Mindy Uhrlaub learns that she carries the gene for the fatal neurodegenerative disease amyotrophic lateral sclerosis (ALS). Despite the incredible strain of this diagnosis and additional life challenges, Mindy manages to move forward with amazing tenderness, persistence, and love. Far from a depressing story of misfortune, Last Nerve is as uplifting and witty as it is raw and real. It’s a testament to hope, the endurance of family, and the resilience of the human spirit.

 LEARN MORE ABOUT LAST NERVE 

A Reminder that Last Nerve is Available on
Audiobook…and here’s proof that I narrated it myself.

 LISTEN NOW 

The audio book is also available at:
Amazon | Spotify | Barnes & Noble
Chirp Books | Libro.fm | iTunes | Everand

Mindy Uhrlaub

I’d love to hear from you!

 CONTACT ME HERE 

MINDAY URHLAUB

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Mindy Uhrlaub, 26 Austin Avenue, San Anselmo, CA 94960, United States

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